Monday, April 28, 2014

Superhero in Surgery

Sylas is in surgery now. 

We made it to Oakland last night but with all of the cancellations it didn't feel real until he was wheeled into the operating room this afternoon.

Then I cried.

He is so brave and seeing as it's National Super Hero Day, I think it's a great day for surgery.

Friday, April 25, 2014

No Surgery Today

We are in limbo.

About an hour into our drive to Oakland yesterday, we got a call that we were once again being rescheduled.

Of course we are so thankful that our son isn't the one in need of emergency surgery. So SO thankful. But we are emotionally exhausted.

And still waiting for a new date. 

Thank you for your continued love and prayers.

Thursday, April 24, 2014

To Sylas the Day Before

This is it, son. 

After some re-scheduling and crazy messing with mommy's emotions, tomorrow is the day.

The day that has the potential to change the way you move forever. To give you more freedom and less pain, with hopes to keep you walking your whole life.

 It's going to be tough, but you conquer tough.

More than anything, I want you to know that the you at this very moment is so very perfect. You have come so far. The way that you walk and climb onto chairs and into the car is a miracle. You, who the doctors told us would never do those things, are amazing.

Making the decision for this surgery has not been easy. Your dad and I have been thinking, praying and talking with doctors about it for more than two years. We have been told over and over again that this could really help you move more freely. You are a great candidate. You are at the exact right age and it absolutely could not be done after the age of 18.

So we are the decision makers. 

I try to put myself in your shoes and when I do that I know that absolutely this is something I would have wanted my parents to have done fore me. 

So we are doing it for you. 

And you are going to rock this thing.

A couple of weeks ago we went out hiking together as a family. Do you remember finding all those treasures and Auggie wanting to jump into the water?

When we were out, we took some video of you. We want to remember how you walk right now. It's so beautiful and such a miracle.

When I try to imagine you after this is all over and you are moving differently, I get so weepy. You know me, crying about everything. It's just that when I look at you I can't help it. When you walk, you inspire. When you talk, you challenge.

And sometimes I can't believe you are still here. That you lived.

That I get to mother you into a grown man.

I'm so proud of you.

*A big thank you to Frances England for allowing us to use her beautiful music.

Monday, April 21, 2014


Thank you for all the love and support so many of you have shown our family as we prepare for this big step in Sylas' life. 

We got a call today from the surgeon's office that they have an emergency surgery they have to perform on Wednesday. Because of this Sy's surgery will now be on Friday at noon PST. I will continue to keep you updated. 

Friday, April 11, 2014

Sunday, April 6, 2014

Do You Want to Build a Snowman?

It was 60 degrees yesterday.

And we had yet to play in the snow this season. 

I know many of my midwest and east coast friends are ready to murder snow, so this is unfathomable, but mostly we've just looked at it from a distance.

Nothing like a short drive up a mountain on a warm day in April to end up here.

For this.

Auggie's first time sledding. 

I think he liked it!

Also, a lot of this happened.

Then we built a snowman. He was promptly named Olaf. Can you believe the originality?

The kids hard a hard time saying goodbye to Olaf.

Farewell, sweet friend. Farewell.