Sunday, January 26, 2014

Selective Dorsal Rhizotomy

On April 23, Sylas will be wheeled into a sterile room and will encounter something that could change his life forever. 

He will be undergoing a surgery called a selective dorsal rhizotomy. Feel free to click on the link for more info, but in short, an incision will be made near the base of his spine and the nerves that control his sensory function will be tested. After multiple tests, the nerves that are not working properly will be severed.

It will be intense. We are told an 8-10 hour procedure and 6-8 weeks inpatient therapy.

And it's 4 hours away, in Oakland.

Last October, we went to Oakland for a series of tests and it was determined that Sylas is somewhere between a really good and a great candidate for this surgery. One surgeon told us that he would be surprised if we didn't see dramatic results for our boy. 





Exciting.

So scary.

Really exciting.

We have been talking, thinking, praying about this procedure for more than 2 years, and now it's on the horizon. We can see it. 

I've been making plans and preparations like a woman about to go into labor. 

I'm nesting.

My mom's plane ticket was booked last weekend which makes it feel more real. She has graciously offered to stay with Ivy and August during the surgery and after while Ryan works and I stay in Oakland. She will stay for the first month and I'm still working out the details for subsequent weeks. 

This is really happening. 

And I'm not sure how to feel.

16 comments:

  1. I can only imagine how exciting AND frightening this all is for you and your entire family. I want you to know I'll be praying for your brave Silas, for the doctors and surgeons and nurses who will care for him, and for your mother's heart. ((hugs))

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  2. Oh my!! Scary and exciting for sure! Prayers will be coming your way,especially on April 23rd! I hope it all goes smoothly and he has a speedy recovery and great results! God is good

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    1. Victoria, we appreciate your prayers so much. Thank you!

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  3. praying for the amazing little man (and his awesome parents and family). it has been a gift to pray for him (and siblings) since before they were born in 2007. and continues to be a gift today. God has been sooooo good and this little man is such an inspiration!

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    1. Oh, sweet Yvette. Thank you for your kind words. I hope you all are doing well!

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  4. I'm so glad I saw this. How exillerating! Praise the Lord for science. I will begin holding you up in prayer.

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  5. Wow! This is amazing! I'm so happy for you guys. You'll be in my thoughts for sure!

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  6. This is wonderful news! Sounds like the doctors are pretty positive about the results. I will keep you and your family in my thoughts. You are all so strong and deserve a best possible outcome!

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    1. Thank you for your kind words, Tatiana!

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  7. I wish I had the chance to meet you when we lived closer (Minnesota and Wisconsin) because you inspire me! Now we're literally across the country from each other, as I'm now in SC! Praying for you and your family! I'm a firm believer in "everything happens for a reason," and I know that God will keep you and your family in his hands. Keep us updated, please!

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  8. Because of life and living in community with the Miller family here in NM, I haven't stayed in tune with my blog feed but just had a chance to check in and yours was one of the first I saw. Love you guys so much and we will pray for you in one of our prayer meetings here at the house. You guys are so courageous in so many things and I am encouraged by your lives. Give your hubby a hug from me. We will be in San Fran for the Daniel Training Network conference at the very beginning of April and if we are going to pass by your way we might give a ring to just say hey. Love you guys!

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  9. I have been missing your writing! The SDR will go beautifully and will make such a difference for Sylas. Claudia had hers done when she was three in St. Louis and even with her not being a walker we are happy with the freedom she has had in her hands. Bonus has been very few other surgeries too. Wishing you the best. It is completely stressful on Mom and Dad but I can tell you that Claudia barely remembers the whole ordeal. We had to drive from out of state too. Hang in there Mama! The planning will pay off!

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  10. Praying for You Brianna! So glad to hear what is going on in your life - Jen Short

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