Well, a little over a month ago, I received an email from Seth Bolt, the bass player for NTB. [He's the guy in the white shirt].
Seth had recently found my blog and said that he immediately remembered Sylas. [Really, who can forget Sylas?] He was so inspired by our story that he started sharing it with family and friends. In particular a friend [Ella Mae Bowen] who is getting started in her music career. Seth has been assisting Ella Mae in writing and said, "Sylas has remained the inspiration for much of our writing and her [Ella Mae's] vision for the impact she wants to have on the world. Sylas has also earned a new nickname. To Ella Mae Bowen and I, he's "The Fighter"."
Ella Mae is in the process of starting an organization called "The Fighter's Foundation," whose main purpose will be to help out families who have been hit with major medical bills. I don't know a lot about it yet, but I'm sure I'll be hearing more about it soon.
Maybe even tomorrow, because, yes....
Yes, we are having lunch with a Mr. Seth Bolt in Chicago and then we're off to see NeedToBreathe and Taylor Swift, tickets compliments of Seth. Sylas is beyond excited to see his "Buddy Seth" and we feel so privileged to have this opportunity.
And lastly, I must not forget to thank "Buddy Seth" and Robyn from the NE Patriots for sending Sylas a great big box of goodies. I think we now have a Patriots fan in our family.
P.S I've been meaning to tell you all the Sy got new glasses. He picked them out himself. Doesn't he look handsome and grown up? Makes me all weepy.
Seth had recently found my blog and said that he immediately remembered Sylas. [Really, who can forget Sylas?] He was so inspired by our story that he started sharing it with family and friends. In particular a friend [Ella Mae Bowen] who is getting started in her music career. Seth has been assisting Ella Mae in writing and said, "Sylas has remained the inspiration for much of our writing and her [Ella Mae's] vision for the impact she wants to have on the world. Sylas has also earned a new nickname. To Ella Mae Bowen and I, he's "The Fighter"."
Ella Mae is in the process of starting an organization called "The Fighter's Foundation," whose main purpose will be to help out families who have been hit with major medical bills. I don't know a lot about it yet, but I'm sure I'll be hearing more about it soon.
Maybe even tomorrow, because, yes....
Yes, we are having lunch with a Mr. Seth Bolt in Chicago and then we're off to see NeedToBreathe and Taylor Swift, tickets compliments of Seth. Sylas is beyond excited to see his "Buddy Seth" and we feel so privileged to have this opportunity.
And lastly, I must not forget to thank "Buddy Seth" and Robyn from the NE Patriots for sending Sylas a great big box of goodies. I think we now have a Patriots fan in our family.
13 comments:
It's so beautiful to hear about your son and his story are impacting the world.
Wow, I've always been a huge NEEDTOBREATHE fan... that was WAY too cool! :) Way to go, Silas, for being a fighter!
Silas is looking SOOOO grown up in these photos - gorgeous!
wow, he sure does look even more grown-up!!
this makes me love needtobreathe even more :)
As a New England girl I must say GO PATS :)
Sylas is an inspiration to so many!
Ivy looks adorable in her Pats gear too!
you are all so blessed =)
Thank you for sharing this!
love this, every last bit. so glad to see you and sy surrounded by such good people.
this. is. awesome.
How fun is that! Such a wonderful experience.
I first heard about your "Fighter", Sy, last week when Bear posted this blog on his facebook page and haven't been able to forget him!(Who could?) I have since shared your story with my friends and family, really anyone who will listen. I hope that Sylas has a wonderful time today meeting his buddy Seth for lunch and later at the concert as well. Keeping your family in prayer.
Very cool! Sylas & Ivy are growing so fast... can't wait to come out and see you all in a few weeks!
Sylas those are the coolest glasses I have ever seen! you Look awesome in them :) Seth is just awesome :)
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