Wednesday, January 27, 2010

He Laughs in the Face of It

Our son.

Was born 120 days early.

Weighed less than one pound.

Lost five siblings. Siblings that had been with him since conception.

Was on a ventilator for more than 2 months.

Underwent surgery at 2 weeks old.

Underwent surgery at 2 months old.

Underwent surgery at 3 months old.

Underwent surgery at 22 months old.

Battled pneumonia. Twice.

Spent 124 days in the NICU.

Came home on oxygen, a pulse oximeter and an apnea monitor.

Struggled with crowds, sleep and normal life due to an underdeveloped nervous system.

Has very poor eyesight.

Has a paralyzed vocal chord.

Has cerebral palsy.

Recently had botox injections.

Is in the process of serial casting.

Yet...

None of that defines him.

Our son is...

LOVING.

COMPASSIONATE.

JOYFUL.

and

FULL of LIFE.


video

I learn a lot from him.

67 comments:

  1. LOVE this! God is so very good!

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  2. That laugh. Wow! He is a blessing!

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  3. His laugh is infectious!

    Amazing what kids teach us isn't it!

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  4. That is AWESOME! Joshua is going to love to watch this in the morning! We have spent time and time again watching Sylas!! He is truly a remarkable gift!!

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  5. He is hysterical! Love it! Leah loves it too!

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  6. Thanks for giving me the best part of my day today. That little laugh is absolutely priceless!

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  7. thank you so much for sharing!!!!! what a sweet kid he is! and how God is going to use him has only just begun!

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  8. That is the most awesome video EVER!!! This is a great way for me to end my day, I love that laugh!!!

    Maybe you've already told us, how long are you expecting to do the casting?

    Thanks for sharing Sylas with us!

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  9. Oh, Sylas!! Watching you walk makes me cry, watching you in this video makes me laugh out loud - every time! You're one amazing guy!

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  10. God gave him a beautiful gift. He gave him lots of beautiful gifts!

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  11. LOVE this...it makes me laugh and cry all at the same time...oh is is such a blessing!

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  12. Oh Brianna,
    That is priceless and it made my day! You have a precious family and I love checking in on you guys. God Bless.

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  13. Can I say, what an amazing laugh! Best I've ever heard.

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  14. WOW, he is amazing, made me cry!

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  15. Wow! That deep laugh made me laugh too!

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  16. Ahaha... I'm laughing right along with him. He is so precious!!

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  17. And in turn, we learn a lot from you. Your son is an inspiration...as are you. Thank you for sharing your story and your faith.

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  18. hehehe!!!!! thanks for the smiles mr. sy guy. you steal my heart! i love you !

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  19. Thank you for the smiles you brought to our house with that video -- what a wonderful gift this cold January morning!
    Here's to remembering God's goodness all day long. Sylas is such a wonderful picture of it.

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  20. Oh his laugh is SO contagious! What a cute little Sy guy! ;) Thanks for sharing!

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  21. You have NO idea how much I needed this today. Tears streaming down my face.

    THANK YOU! Kiss that boy for me.

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  22. Oh, is just AWESOME! Sylas: what a blessing. What a miracle. What a GOD!!!


    PS. I just received my order from Rockin' Green soap in Cherry Almond...yum-my! Cannot wait to use it! :) Thanks for the lead.

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  23. This is wonderful! I'm laughing AND crying :) Praise God for your family.

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  24. oh, laughing and tearing at the same time.

    what a JOY he is. praising God for YOUR son right now.

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  25. I needed this today! Your Sylas is so awesome...I have tears from laughing and crying at the same time!

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  26. I could listen to him laugh all day. Soo cute.

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  27. I've never commented before, but can't let this one go by without saying something...that is the sweetest, most darling thing I have seen! That laugh is so genuine and put the biggest smile on my face. What a pair! He is such a blessing!

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  28. AWESOME. Yes, laughing and crying at the same time. :)

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  29. That is the cutest video ever. Made my day. Sy is just adorable and yes - laughed it all in the face. Go Sy go!

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  30. I have never commented before either - I only found your blog fairly recently. But I just have to say that is FABULOUS. I can't watch it and not laugh with tears in my eyes. What a hard story but what a joyful boy!! He's gorgeous.

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  31. Love It! Absolutely Love It! Wonderful Sy. Thank you for allowing your lives into ours. Such a powerful blessing and message.

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  32. HE IS SOOOO SWEET! I LOVE HIS LIL LAUGH...HE IS PRECIOUS!!!!

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  33. I can't even tell you how many times Layla and I watched this. She loves Sylas :-) He shares the hope that God is good beyond our own scope of imagination.

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  34. Long time reader, first time commenter... I couldn't NOT comment on this. Sylas is a great reminder of how awesome our mighty God is, and his laugh is so contagious!

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  35. I laughed so hard I cried! Thank you for sharing!!!

    God bless your family :-)

    Sylas is as lucky to have you as you are to have him (same goes for Ivy & Ryan).

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  36. So true!!!! xoxoxoxo (One for each of you...)
    Rachel

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  37. What an amazing, awe inspiring little boy!!! I wish I lived closer to your family so that I could meet you all in person. You guys are a wonderful inspiration!!

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  38. I can only hope to have as special of a child as you have in Sylas. He is truly a gift from God. And your husband seems like the ultimate dad, how awesome!

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  39. Loved the post and video guys! What a great laugh! That totally made my day. Ryan should so be a b-boxer. :)

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  40. OK, this is my second favorite video of Sylas...second behind you reading Where the Wild Things Are to him...love that one...Your son is awesome!!! Makes me smile everytime I come to your site!!!

    Ginny, Forest Lake, MN

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  41. Amen! That is amazing, and so is little Sylas :)

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  42. I love his laugh! Thanks for sharing this video - it made my day!

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  43. this post made me laugh and tear up at the same time. what an AWESOME kid!

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  44. We could all learn a lot from him. And you. We could all learn a lot from you, too.

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  45. It's amazing what one little boy can teach so many others. What a blessing.

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  46. I could watch this a million times!!

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  47. That is priceless. I could watch it a million times!!

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  48. I found your blog a couple of days ago...not even sure how I came across it. I was already interested in your story. But, tonight after seeing this video and what you wrote about your son...I'm hooked, AMAZING. Talk about making someone feel good, and smile all over, thats what that amazing little guy just did for me. Thanks for sharing.

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  49. how a pricless post!!!!
    even though i don't know him, just looking at his big smile makes my day!
    God bless you guys!

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  50. oh and i can't stop watching that video!! FANTASTIC!! His laugh is too great!

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  51. I had happy tears in my eyes I was smiling so much! What a CUUUUTE laugh!!!

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  52. Oh my gosh. I watch this at least once a day! Not only does his laugh kill me (in a good way, of course!), but he reminds me SO much of this little boy I used to work with and nanny, named Noah. Noah has a lot of the same issues to overcome as Sylas, and just brings SUCH a joy to everyone around him. I can't get over it! What an incredible, indescribable blessing you have in both your children. They are darling. I'm still hoping I might deliver a few weeks early, and my baby and Sylas (and my husband) will all share the same birthday :) teehee

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  53. I think I have watched this 50 times. LOVE IT!
    A in

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  54. That laughter coming from your gorgeous son. Has me in tears over here. What a life he is!! I am so honored that I got to meet you and yes, the time was not enough. Not nearly enough. But your spirit and your soul was tangible and the love you have for your family is inspiring to me. I am so excited I get to share some life with you in blogland....

    Hope you're having an awesome weekend!!

    xo
    Lee

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  55. i love this!! every time i watch it, it makes me laugh so hard! he is definitely a special little guy who brings joy to soo many ppl!

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  56. Looks like somebody is getting a backrub...

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  57. This absolutely made my day, loved it, and can't wait to catch up!

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  58. Hi! My mom forwarded this to me and I cried! I'm so touched by your family! My Mom heads up our Mighty Overcomer Ministry at our church that currently has 10 children that have various special needs (autism, cerebral palsy etc…) and have challenges functioning well in a regular classroom. The life that they hold in them is such a joy! I can see that same life shinning out of your son! Thank you so much for sharing this with us! Through reading your posts I feel like I know you and your family personally! I’m now subscribed to your blog and love hearing all the updates! You and your family are in my prayers constantly! It is so awesome how God brings people across our paths to lift us up and keep us going! I’m so glad my mom forwarded this! I’m definitely encouraged from each of your posts!

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  59. I have never laughed and cried so hard before. What a precious little guy, and Praise God for all the obstacles he has helped him through. What a gift he is.

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  60. I am a NICU nurse (and a mother) and I just wanted to thank you so much for sharing this.

    I see so many of my coworkers who have been in the field for a million years and have become so pessimistic and jaded.

    It's true that these children have a difficult road and that many don't make it.

    What I don't understand is why they don't see the possibilities and the JOY!

    I always remain optimistic -
    this has been a hard week at work,
    but this video reminds me to have hope and to have faith.

    Much love to you and precious Sylas.

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  61. your family is truly and inspiration!
    ~Melissa M.

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  62. What a blessing = that is true joy and this is why you are still standing - because the joy of the Lord is your strength and I read strength and joy in every one of your posts despite the challenges and strains of what you are facing. Your testimony is touching lives so deeply. Thank you for sharing....

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Thank you so much for taking the time to share. I love hearing from you.

P.S. I'm sorry for the word verification step, but oh, my. I'm getting lots of spam.