Tuesday, September 30, 2008

Update

Our life is crazy! Sylas has an MRI tomorrow morning and since he'll be sedated, a pre-op appointment with the pediatrician today. My husband Ryan, who works for a non-profit, is getting ready for their annual gala/fundraiser that takes place on Friday and on top of all that, we're moving this week! For the past year, we've been renting a townhouse from some friends. They just recently sold it, so we'll be moving to an apartment in a lovely little town west of Minneapolis. It's a much smaller place, but we're excited to simplify our lives. We have been getting rid of so much stuff. Ryan has already taken 3 car loads to Goodwill and there's still more to go.

In other news, Sylas' physical therapy evaluation went well. He'll be getting therapy once a week, which is exactly what we wanted. The MRI that's scheduled for tomorrow was ordered by the pediatric neurologist we saw a couple of weeks ago. Thankfully it's first thing in the morning, since Sylas can't eat for 6 hours beforehand. YIKES!!! He's going to be a little bear.

For those of you who are wondering how my pregnancy is going, I'm feeling great! I'm 21 weeks and 6 days today, exactly one week before I delivered in the last pregnancy. I'm still being checked by the doctor every 2-3 weeks, and at my last appointment, they said there is no way I'm going to deliver anytime soon. I'm praying they are right and that our baby girl will continue to grow safely inside of me for many weeks to come.

It may be awhile before you hear from me again, since we'll have to get the Internet set up in our new place. Hope you're all healthy and happy and enjoying the beautiful autumn weather.

Tuesday, September 23, 2008

Thank You

Thank you, thank you, thank you for all of your encouragement! I have been so blessed by your kind and thoughtful words.

...and just so you don't think we're all gloom and doom around here...


P.S. One great thing that came from Sylas' neurology appointment is a prescription for private physical therapy! Hooray! His evaluation is tomorrow and from there they'll determine how often he needs therapy. I'm hoping for at least once a week.

Friday, September 19, 2008

The Neurology Appointment

I'm an emotional wreck. Sylas had his neurology appointment this morning and the neurologist said that Sylas does fall into the category of having cerebral palsy. Not new news, but solidified news that was like a punch in the gut. He also said that Sylas' arms are tighter than he would like to see, and only time will tell whether it's spastic diplegia or quadriplegia. Ok, this was new news. It's not something we'd even talked about with any of our doctors or therapists. No one even mentioned there being a problem in his arms. On occasion, I have observed that Sylas' arms are stiff and he resists having them raised above his head, but he always seemed to have good range of motion, so I didn't make a big deal of it. Maybe I was in denial. Then to top it all off, we stopped at Walmart on the way home to return something and they wouldn't let me return it because my receipt was 5 days past 90 days. I understand policies and I myself am an avid rule follower, but I wanted to cry and scream that I just found out that my son might be a quadriplegic, so let me return the stupid toy! I refrained, got the items I needed, then calmly proceeded to my car where I balled my eyes out. Sylas cried too. He hates to sit in a non-moving vehicle. Eventually we made it home and had some lunch and then we were happier. Oh, the power of food. My afternoon has gone much better after a lovely visit with a friend and a new sweater from GAP. I'm now sitting at home watching my beautiful, happy, energetic son sleeping peacefully, and I'm reminded that God is good and that this news doesn't change how precious Sylas is and how blessed I am to be given such a gift.

Saturday, September 13, 2008

Outdoor Fun

I am loving this weather! Autumn has always been my favorite season, but with this extra bump on my front, I am basking in the cooler weather even more. Ryan worked a few long days this week, so he was able to take yesterday off. We took advantage of our free time and spent the afternoon lazing around Stillwater, MN. We went to the apple orchard, petted the farm animals, walked along the St. Croix River, and had a picnic in the grass. We need to get our son in the grass more often. He wasn't sure what to do when those prickly little blades tickled his neck.





We have a busy week coming up, with Sylas' OT and PT evaluations and his first visit with the neurologist. I'll keep you posted as to how those visits go.

Monday, September 8, 2008

Home Again, Home Again

Boy it's good to be home. We just spent a week and a half in Wisconsin visiting my family, and had a wonderful time, but it's always good to sleep in your own bed again. It was great to spend the day with my brother Drew on his birthday, see the hospital where my sister Courtney works and watch my sister Kyrsten kick some bootie in volleyball. Ryan and I also got to spend one night away from Sylas in lovely Kohler, at The Inn at Woodlake. Thank you Nonna and Papa for looking after our little bug.

Unfortunately no vacation is without its trials and I started feeling sick about half way through our trip. Eventually (on my birthday) I went to the doctor and found out that I had a sinus infection and two ear infections. My mom said she would make anything I wanted for my birthday meal, so at my request she made a huge pot of chicken noodle soup. Exciting huh? And of course, as hard as I tried to wash my hands constantly and not kiss Sylas' cute little face, he caught my cold. We're off to the doctor this afternoon to have them take a look at his ears. Poor little babe. Hopefully he'll be on the mend soon.