Wednesday, August 27, 2008

Last Weekend

We're still trying to recover from our busy weekend. We took advantage of the gorgeous 70 degree weather and spent Saturday at Como Zoo and Sunday at the Minnesota State Fair. It was my first time going to the fair and wow I've been missing some delicious greasy food. I actually felt the baby kick for the first time towards the end of the day. I'm not sure if He-She was enjoying or protesting all those cheese curds. Sylas was a little champ strolling around observing all the people with his newly bespectacled eyes. As for the Zoo, Sylas seemed to like the fiberglass animals better than the real ones.


Sylas riding Gino the Italian giraffe



Sylas after the Zoo


Holding up the line at the State Fair



Rockin' out to our good friends the Sweet Colleens



The bus ride home

Friday, August 22, 2008

Sylas Goes to the Park

The other day we went to the park with some friends and Sylas went in an outdoor swing for the first time in his life. He had so much fun! I'm not sure why we haven't done this before, but we will definitely be taking advantage of the park for the rest of the summer.


video


By the way, Sylas is doing awesome with his glasses. He wears them almost every minute that he's awake. He's always been a pretty happy guy, but he's even happier now. It will be interesting to see how much faster he learns and picks up on things now that he can see!!! Thanks to everyone for their encouraging words about how cute he looks! We wholeheartedly agree.

Tuesday, August 19, 2008

A Whole New World





Sylas' glasses have arrived and he's doing incredible! We put them on after his last nap and he kept them on for about 25 minutes with no complaints. We're positive that he could tell the difference in his sight. He was looking all around and laughing and squealing. We decided to really test the glasses out, so we went to the mall and he wore them for about an hour, only touching them once or twice, and not really trying to take them off. We are so proud of him. It makes my heart happy to know that he's seeing the world in a whole new way.

Friday, August 15, 2008

15 Weeks







Baby #7 is on its way! He-she should be arriving sometime in the beginning of February. We are so excited to welcome this new addition to our family and we are thrilled that Sylas will have a sibling so close in age. I've already had a few ultrasounds and so far everything looks great. I have another ultrasound next Monday and they said they may be able to determine the gender at that time. I'll keep you posted...


Tuesday, August 12, 2008

A New Look for Sylas

My baby needs glasses! Sylas had an eye appointment about 2 months ago and we found out that he is quite nearsighted in his left eye and would need glasses within 6 months to a year. That 6 months to a year came faster than expected. He had another eye appointment this afternoon, and the doctor said that Sylas is really starting to favor his right eye and it's time for glasses. We ordered some bright blue, practically indestructible frames today and we should get them in about a week. He looked so cute, but wouldn't leave them on for longer than a few seconds. Have any of you had a baby who needed glasses? Any tips to get them to keep them on?

I'll post pics as soon as the glasses arrive.

Friday, August 8, 2008

A Day of Firsts



Sylas got a new highchair! We were so happy to find one that supports him well enough that he doesn't topple over. Yesterday was the first day we tried it out, and he must like it, because it was a GREAT eating day! He added a new "dish" to his diet. He's loving the Gerber Lil' Crunchies. I think he ate 1/3 of the can yesterday. Ryan also managed to get him to eat baby food pears with no protesting.

Another first for yesterday - Sylas pulled himself into a standing postition!!! HOORAY!

Wednesday, August 6, 2008

To Eat or Not to Eat

Feeding. Oh, the bane of the parent of a micro preemie! Feeding a micro preemie is like trying to dance the cha cha cha on a tightrope! Impossible. I know that many parents of preemies have it a lot worse than we do, but feeding Sylas is not how I imagined it would be. He started off as a champion eating, chowing down breast milk from a bottle with great passion. That blissful time ended all too soon.

Early in life, Sylas had a PDA ligation, and kids who have this surgery are at risk of one of their vocal chords being nicked by a surgical instrument resulting in a bruised or paralyzed vocal chord. After a couple of weeks of bottle feeding, Sylas had a bronchoscopy and a swallow study done and it was determined that his left vocal chord was paralyzed and he was aspirating milk into his lungs. No more breast milk and on to formula with thickener added. It had to be thickened to a honey consistency. Can you imagine the tiny jaw of a 3 1/2 lb. baby trying to suck honey out of a hole the size of a pin? Cruel. It would take him forever to eat and he wouldn't eat as much. It doesn't need to be thickened anymore, but he still will only take 2-4 oz. of formula at a time.

Back in the Spring, we started to try to feed Sylas baby food and baby cereal. It was met with much gagging and protest. However with help from our occupational therapist it has slowly gotten better. He will now eat saltines, baby food bananas, the broth of Panera's chicken wild rice soup and Ryan's soggy golden grahams with great abandon. Lest I get discouraged, I can watch this video from a few months ago just to see how far he's come.
video

Saturday, August 2, 2008

Museums and Other Things

Sorry for the delay in getting something up about Sylas' doctor appointment. I've been feeling under the weather the last couple of days, but thankfully woke up feeling great on this beautiful Saturday in MN. Ryan, Sylas and I like to do something fun on Saturdays, so we went the the Minneapolis Institute of Arts Museum. I'm not sure if we're the ideal family to go to a museum. Sylas was a gem, but early on he figured out that since the rooms were so empty, they echoed. He kept doing this really drawn out "aaahhhhhh" sound. It sounded like he was singing. We thought it was cute, but I'm not sure how everyone else felt about it. At least he didn't get in trouble. I on the other hand got reprimanded for having a glass of water in the museum and Ryan was scolded for having his finger too close to an Ansel Adams photograph. Troublemakers!

Sylas' pediatrician appointment went well. He's a whopping 14 lbs. 15 oz. and 26 inches long. I actually thought he would weigh more, but the ped. said with all of the crawling he's doing he's burning a lot more calories. Of course he's not even on the charts for his actual age (13 1/2 months), but now he's not even on the charts for his adjusted age (9 1/2 months). Hopefully our little man will get a bigger appetite soon.

As for the question of Sylas having Cerebral Palsy, the doctor did say that Sylas is a bit stiff in his legs and pelvis (which we already knew), but she wants him to see a pediatric neurologist and have him make the diagnosis. We won't see him until sometime in September or October. Until then, we'll just keep working with Sylas and pray that he keeps improving. Thanks to all of those who have been praying for us regarding this issue.

Our Occupational Therapist came out to see Sylas on Wednesday and brought what's called a corner chair. It even has a little desk to go with it. It offers plenty of support for Sylas to play while sitting up. He loves it! Doesn't he look darling?