Saturday, August 2, 2008

Museums and Other Things

Sorry for the delay in getting something up about Sylas' doctor appointment. I've been feeling under the weather the last couple of days, but thankfully woke up feeling great on this beautiful Saturday in MN. Ryan, Sylas and I like to do something fun on Saturdays, so we went the the Minneapolis Institute of Arts Museum. I'm not sure if we're the ideal family to go to a museum. Sylas was a gem, but early on he figured out that since the rooms were so empty, they echoed. He kept doing this really drawn out "aaahhhhhh" sound. It sounded like he was singing. We thought it was cute, but I'm not sure how everyone else felt about it. At least he didn't get in trouble. I on the other hand got reprimanded for having a glass of water in the museum and Ryan was scolded for having his finger too close to an Ansel Adams photograph. Troublemakers!

Sylas' pediatrician appointment went well. He's a whopping 14 lbs. 15 oz. and 26 inches long. I actually thought he would weigh more, but the ped. said with all of the crawling he's doing he's burning a lot more calories. Of course he's not even on the charts for his actual age (13 1/2 months), but now he's not even on the charts for his adjusted age (9 1/2 months). Hopefully our little man will get a bigger appetite soon.

As for the question of Sylas having Cerebral Palsy, the doctor did say that Sylas is a bit stiff in his legs and pelvis (which we already knew), but she wants him to see a pediatric neurologist and have him make the diagnosis. We won't see him until sometime in September or October. Until then, we'll just keep working with Sylas and pray that he keeps improving. Thanks to all of those who have been praying for us regarding this issue.

Our Occupational Therapist came out to see Sylas on Wednesday and brought what's called a corner chair. It even has a little desk to go with it. It offers plenty of support for Sylas to play while sitting up. He loves it! Doesn't he look darling?





7 comments:

  1. He is a complete doll... truly. Isn't it funny how the adults sometimes get into more trouble than the kids do. :)

    Not that I'm a doctor, but I've always heard that it's "progress" more than "numbers" that are important in terms of growth, etc. And he's crawling and playing and eating, and that's progress...

    Yay for Sylas! :)

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  2. Brianna, Ryan, and Sylas,
    I have been following your story since hearing about you last June. Your faith in the Lord has inspired many and Sylas' life is a testimony of God's goodness.
    I am thankful his appointment went well and I will continue to pray that God will give you strength for each day, as well as for complete health in Sylas' body. God bless you.
    Love your sister in Christ,
    Breanna

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  3. LOve the pics.
    he is gorgeous.
    lets go walking this week?

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  4. From the other side of the world, we wanted to say hi.Wonderful to see how Sylas is doing. Claire (now 9 months old) liked him from the first moment she saw him, so i show his picture to her every now and then. She hopes they can play again together sometime in the future. You are in our thoughts!

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  5. Brianna & Ryan, I first "met" you through my daughter Beka Hache while we were in Kiev, Ukraine on Easter last year. We've spoken by telephone & in person last Jan. when Mercedes was born. You know you are all in my prayers still and I wanted to tell you how beautiful your son is. He is so alert, his smile is like the sun (and the SON too!), I know that your love for him is all he'll need to get him through each day. I'll be back in Minn. in Sept. Hope to see you at church.

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  6. Isn't God wonderful!

    Your little man is a reflection of His goodness.

    God bless,
    Lisa in Virginia

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  7. wow what a cute little boy! I'm so blessed to be his auntie! I love how studious he looks in his little chair. I miss you guys and you really need to come to FDL soon. Love you lots!

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