About a month ago Sylas had an appointment with his pulmonologist (lung doctor). His lungs were sounding great, but the doc suggested that Sylas may be showing early signs of spastic diplegia which is the most common form of cerebral palsy. This type of CP typically just affects the legs and not the arms or the trunk. Right now, Sylas has increased tone in his legs which makes it a little more difficult for him to bend his legs, so in turn, he's having a hard time learning to sit. Also, when helped to a standing position, he stands and walks on his toes instead of on flat feet. WOW! Going to the pulmonologist, you don't expect to hear the words cerebral palsy! Of course we knew it was a possibility with Sylas being born so premature, but still, no parent ever wants to hear that their child may have CP. After about a week of crying and walking around in a fog, I decided to suck it up and figure out a way to help Sylas work through his challenges. I've been searching the internet and finding amazing support groups comprised of parents who have kids with CP or other difficulties and moms who are blogging about the ups and downs of having a kid with CP. Ryan and I have also been helping Sylas sit and sit and sit..and then sit some more. We've gotten great tips from Little Man's physical therapist and he seems to be slowly improving. He's nowhere near sitting up by himself, but his balance seems to be getting better and we're hoping he'll get there soon. He still hasn't officially been diagnosed with CP. He sees his pediatrician (she'll make the actual diagnosis) on Thursday and it may be too soon to tell. She'll probably want to schedule an MRI or some other type of testing. I guess I'm realizing that whether or not Sylas has CP, he's still our same silly Sylas, amazing us every day with what he can accomplish.
Here's a little video to show you how well Sylas is doing. He does his best sitting with the singing toolbag in front of him.